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Showing posts with label symptoms. Show all posts
Showing posts with label symptoms. Show all posts

Friday, January 17, 2020

A standpoint of status



Over the last three months, I've noticed a sharp decline in my ability to perform certain tasks.  Specifically, during the warm-up sessions at Parkinson's Boxing workouts.  Almost any coordinated movements between my hands and feet no longer happen.  If I get my feet going my hands stop and vice-versa.  Even marching in place has become nearly impossible to do.  So as I prepared a list of questions for my next neurologist appointment, I began to realize just how much functionality I had lost. I made a list of things I could no longer do and began wondering what would be the next thing to go.  I mentioned this to my wife and her comment, in return, struck a chord.  "Look at the positives", she said, "don't focus so much on the negative."  "Easy to say, hard to do", I thought.  Then it hit me, I've always been the optimist. Overly so, if you've ever worked with me on any project.  So what was different now?  I spent my career motivating others to get the desired results, now it was time to turn the tables and do something to motivate myself.  Movies, for me, have always been a good source of inspiration and motivation.  I remembered two moments that resonated, both from Apollo 13 and both from Flight Director Gene Kranz.  He was an amazing leader and can be attributed to some very motivating quotes. Who can ever forget "Failure is not an option".  That said, I'm not sure if the  lines I picked are actual quotes of Mr. Kranz or the writers of Apollo 13.  Either way though they certainly worked for me.  
Image result for apollo 13 movie kranz     
Gene Kranz (Flight Director):
"Can we review our status here, Sy, let's look at these things from a... from a standpoint of status. What have we got on that spacecraft that's good?"
Sy Liebergot (EECOM):
 "I'll get back to you, Gene."

The second quote occurs a little later as Gene overhears two NASA directors discussing the low survival chances for the crippled spacecraft:
“I know what the problems are Henry, this could be the worst disaster NASA has ever experienced.”
Gene Kranz:
“With all due respect Sir, I believe this is going to be our finest hour.

Both quotes demonstrate an ability to focus on the positives. Even when everything and everyone around you has nothing but bad news it's important to remember to find those positives.

For me, a new perspective; things could be a lot worse.  Each day is a blessing and should be lived like it.



Monday, November 16, 2015

Parkinson's Symptoms - 70 and counting Part one


What do you picture when you think of a person with Parkinson's?  Tremors, slow movement, shuffled walk, the basics I guess.  I was surprised to find how full bodied this disease actually can be.  It seems to affect nearly all portions of the body in some way. 
 Since the more I looked the more I found, I started making a list.  It grew and grew to a point that I decided to share this.  It was becoming larger than I every imagined.  To date, my list includes over 70 items linked to Parkinson's Disease.  I've split them into two groups, Motor and non-motor.  This post will cover the Non-Motor symptoms.  I've attached  reference for each symptom listed so click away for more information. However, keep in mind that everyone is different and if you're afflicted with Parkinson's you may get some combination of these symptoms and not necessarily all of them.
If you know of any additional symptoms or question anything listed I'd love to hear from you.

Non-MOTOR

Hallucinations and also here
Confusion - delusions/paranoid overtones
Cognitive dysfunction - executive
Dementia
Short term memory - recent events
Difficulty making decisions
Multi-tasking
Visuospatial skills difficulties judging distances
Slowed cognitive speed (Bradyphrenia).
Language dysfunction and also here
Attention difficulties
Psychosis
Impulse control

Mood disorders
depression
anxiety
apathy/abulia
anhedonia
fatigue
Alexithymia -  a personality trait characterized by difficulties identifying and describing feelings and a reduced tendency to think about emotions.

Sleep disturbances
Sleep fragmentation
Initial Insomnia
Excessive daytime sleepiness - somnolence.
REM sleep behavioral disorder (RBD) - vivid dreams, acting out

Autonomic dysfunction
Urinary urgency/frequency
Constipation and also here
Orthostasis
Sexual dysfunction and/or lack of interest 
Excess perspiration - abnormal sweating
Difficulty swallowing

Smell
Olfactory dysfunction
   lack of smell
   phantom smells

Dermatological
Seborrhea
Oily skin

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